The fear of the unknown was causing all sorts of stress – Weight loss, sleeplessness, lack of focus, and the depression was starting to get worse. MRI’s, CT scans, EMG’s, blood tests and painful spinal taps - The results were inconclusive, and the bills were piling up rapidly. I was tested for everything from AIDS to Zika. I didn’t think much of it until my primary care doctor told me this was a much more serious issue and referred me to the first of what would be many neurologists. In March 2017, I noticed my right foot wasn’t keeping up with my left and was causing me to trip. I was living a great and happy life in New York City with my wife of two years, had a soaring career in software sales, and a deep passion for running and sailing Until everything changed. Please take the time to read Jeremy’s story included below: To read more from Jeremy's blog, get information about his book, and sign up for the newsletter, please visit his website Never Say Invisible. Thank you all for your moral, emotional and financial support throughout the years. Those costs include editing, cover design, book formatting and ongoing marketing efforts that will help spread Jeremy's message. We have been so humbled and appreciative of your support, and hope you are excited as we are to read his book.įor clarity, please note that any further donations to the campaign will be managed by Jeremy's parents Fred and Ronnye, and go toward publishing costs of Never Say Invisible: A Memoir of Living and Being Seen with ALS. Jeremy was loved by so many people, and we know his words will go on to affect many more who never knew him. More than anything, we would love you to buy a book and review it on Amazon! The Kindle preorder will be $.99 cents for the first 2 weeks of the release, and $5.99 thereafter. We are so pleased to announce the book, Never Say Invisible: A Memoir of Living and Being Seen with ALS, will be released on Amazon on June 21, 2022! The Kindle and paperback editions will be available, with a hard cover and audiobook version coming soon. While Jeremy didn't get to publish his book, his parents, Fred and Ronnye, have been working with Sandra Jonas Publishing to make sure Jeremy's legacy is fulfilled. Unfortunately, Jeremy lost his battle to ALS on October 29, 2021, one day shy of his 42nd birthday. One of those projects was his book, Never Say Invisible, which he had hoped to see published soon. Your donations helped him live comfortably with this disease, and pursue many projects as an advocate for others suffering with ALS. We started this campaign for Jeremy Schreiber, as a way for his friends, family, and others to show solidarity with Jeremy and help offset the mounting costs of living with ALS.

Never Say Invisible by Jeremy Schreiber